Today I had my first review with my pain team since making the switch Methadone one week ago. As I blogged earlier the first couple of days were quite ropey and my body was kicking out some very strange side effects.
Day 3-5 things had settled down, my headache was gone, the stomach cramps had stopped and other than the increased pain levels the switch was going well. I was a little more awake in the mornings, even if the afternoons were tiring. The biggest issue I was finding was that I was having severe itch attacks 1-2 hours after taking the Methadone.
As instructed on day 6 I dropped my lunchtime dose and kept a log of the changes for when Lorraine called me from the opiates clinic today (day 8). The drop caused yet another spike in the pain, increased spasms and the headaches of the first two days returned. We spoke about these changes and the impact on my daily functioning as I was finding that the most basic of tasks like brushing my teeth was near on impossible. Lorraine the specialist nurse has asked me to continue keeping a log of any side effects whilst we continue playing with dosage. The first step is to reintroduce the lunchtime dose and see how my body responds to that. I will then be seen in the clinic in 4-6 weeks and we can look at the dosage amount and take things from there. We discussed the itching and it was suggested that an antihistamine could combat these side effects. The only issue there is that a lot of these can cause you to be quite drowsy, one of the side effects I’m trying to escape.
Another letter will be going to my GP giv\ing the update and then if the itching becomes unbearable we can look at adding the antihistamine. Yet another tablet designed to combat the side effects of another one. Is it too much to ask for one tablet that works without needing others to counteract it. I know it’s not that simple and I wish we didn’t have to do this but such is life. I have in the last few days received some positive comments from those closest to me, I can hold a conversation for nearly 20 minutes now apparently, I’m more awake in the mornings now and apparently my mood/demeanour has improved. This all has to be positive, especially as the nature of pain and being in excruciating pain you do not notice how moody or grumpy you become. To hear others say you seem better in your mood has to be a positive step forward and although I am a long way off being pre accident Seachy some sort of improvement in mood/pain after so many years is greatly received. I feel like this has been a bit of an incoherent rambling blog but I feel better for putting it out there. The road to recovery will be pathed with hiccups along the way but taking steps in the right direction with honest support can only be a good thing.
For the first time in months I feel like some progress has been made, but I don’t want to shout about it too loudly incase I jinx anything………………….