Article – To the Mom Living With Chronic Illness Who Feels Inadequate by Sharilynn Battaglia

This article was shared on my support groups facebook page recently and it really struck a chord with me (read mum as dad or parent) and it was too good not to reblog on here, I haven’t figured out how to share this using the WordPress button that doesn’t seem to work for me sharing articles so used the trust cut and paste – I have credited the author in the title. So much of this stuff is true, and it is the advice that I give to so many of my friends who are parents, so answer this one question for me – WHY DO I NOT LISTEN TO THIS ADVICE/ARTICLE MYSELF AND GIVE MYSELF A BREAK 😦 If you can answer this for me I will be eternally grateful.

There are things I wish my older self could have told me when I was young, chronically ill mom. Maybe I wouldn’t have felt so alone back then or so wrong and inadequate. I struggled every day to take care of my boys the best I could, second-guessing myself every night. Because that’s what you often do when you’re chronically ill and have children.

I want to tell all the young moms out there who are chronically ill, in pain or disabled the four things I wish my older self could have told me when I was a young, chronically ill mom:

1. Housework isn’t everything.

With children in the house, I understand there’s a certain level of cleanliness that needs to be maintained. And that’s fine. But housework isn’t everything. If a toy stays on the floor another day so you have the energy to read a bedtime story, so be it. If the towels don’t get folded and put away, no one will notice. I used wrinkled towels out of a clothes basket for years (the wrinkled shirts didn’t go over so well).

Living with an unpredictable, chronic disease means never knowing when or how it will strike, so pick your housecleaning battles wisely. Time with your family is more important than dust on the coffee table. Kids can draw in dust! And tomorrow, you may feel better.

2. Invent activities that allow you sit or lie down.

Games like sock golf (no clubs, just nine paper bags on the floor), camp out (I napped) or color clues (I drew clues they had to color in to find the next clue and eventually a treat) allowed me to sit or lie down so I could be involved.

My kids became experts at card and board games because I could play lying down. And don’t count out the movie marathon. Your kids won’t be ruined by a day of snacks and movies under the blankets, cuddling with you because you’re just that sore or tired. Your kids want your time, not your physical prowess.

3. Your children won’t see you as sick.

Sure, I told them. I did. I explained why Mommy couldn’t take them to the park or why Mommy is on the couch again. But they didn’t really see me as sick. They saw me as Mommy. And that made me the most important person in the world to them, and they love you for it. So although you may think they see you as sick mommy, all they see is l-o-v-e.

4. Your children will stand up for people with disabilities.

Now that my children have grown up, they protect me. Even my extremely shy 19-year-old son, who hates talking, took the phone from me during a disability interview to explain what kind of person I am, what kind of mom I’ve been and how many challenges he sees me face even though I won’t admit it. They have never judged anyone and have stood up for those with disabilities at every turn.

They work hard, play hard and truly care about people. This is what they’ve learned growing up with a chronically ill mom.

So, newly diagnosed mom, your instinct may be to feel like a bad mom because your house is messy or you can’t go for a walk with your kids today. But I’m telling you, that’s wrong. You’re exactly enough because you’re Mom, and you’re awesome.

2 thoughts on “Article – To the Mom Living With Chronic Illness Who Feels Inadequate by Sharilynn Battaglia

  1. That is so true. I believe a lot of parents have a reason which leads them to think they are not as good a parent as they should be – yours is your chronic pain, mine was being a single parent. Human nature again!

    Liked by 1 person

  2. I only wish I had seen this years ago. As the beginning states – if the older me could tell the younger me. So many times I tried to minimize my pain not only from my family and friends but also from myself. I just kept pushing on had to get this or that done. So many nights I spent alone crying because I could not just open up and say I need time to let my body try and relax. My kids are great kids, they have patience, tolerance and they both reach out to help those that need it in any way that they can. Great written piece.


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