Expanding my knowledge

As a spoonie it is always good to read other peoples experiences of living with chronic pain/illness/disability they will have invaluable experiences for you to learn from or for you in turn to share with them. Today I stumbled accross this by Toni Bernhard J.D


I particularly connect with number 1 holding a conversation and concentrating is exhausting blogging or emailing can be done at my own pace. I am trying to become better at number 2 with help from my support network and Dr B. Pacing (3) is an invaluable part of everyday life for me, whether it’s by the minute or by the hour!

5 made me laugh as I am sat here propped on 4 cushions and a pillow with two more under my legs. We also bought 2 more yesterday! Life and a LG aged nearly 3 make number 7 difficult my body and my medication however frequently send me into slumber and shut down forcing me to slow down. Online shopping is great, just collecting from the door is a pain, 9 times out of 10 by the time I get to my door the Postie thinks I’m out and is knocking on neighbours (maybe I should put up a sign saying allow me extra time, would anyone take notice of it I wonder?) and finally number 10 I have huge guilt issues over saying no or cancelling last minute because I am out of spoons so I must try harder with this!

I hope my fellow spoonies get some of this and where I am coming from!

One thought on “Expanding my knowledge

  1. Too right I get it mate. I am sitting with my cushion army checking out online shopping. On the subject of the postie, Just order a megphone from Amazon….. You can collect it from your neighbours later on the day it comes. Then you can deafen the bloody impatient postman next time. Works for me !!!!!

    Liked by 1 person

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