A great read from a fellow spoonie.
Pacing – the most important and rewarding tool we have to keeping our spoons for what we want to do, but why, please someone tell me why is it so difficult – it is like kryptonite to a spoonie, that fear of failure if you rest or say no to something. Paying dearly for a day out for day’s sometimes weeks on end (that suffering that is invisible to others who have seen you out so claim you are a fraudster as no one except those you live with see you!), knowing when you should stop but that pesky mind telling you not to ruin someone elses day or fun!
Happy Sunday all! I hope you have had a fantastic weekend!
One of the keys to living with a chronic illness is…you guessed it – PACE YOURSELF!! I cannot say this enough times – to others AND myself included!
Yesterday, Bart and I were going to be going to Toronto for a date night to walk around, have dinner, then go skating. Because I knew we were going to be out for 8 or so hours, I slept in, and spent most of the day on the couch doing homework, reading my book, and relaxing. I knew my body would need to rest before we were out for the night. If I hadn’t done that, there is no way I would have even MADE IT to the shower and getting ready stage, let alone the date! So I hung out all day until 230 when I got up to get…
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