Day 294 – Positives

This afternoon I have had my Norfolk Against Chronic Pain Support Group secretaries head on. I have been typing up the mission statement and constitution for the officers / committee members to finalise. It is a patient led support group that we are looking to expand throughout Norfolk. It is estimated that there are 14 million people in England living with some form of chronic pain (pain that has been persistent for 12 months or more and continues once the initial injury, or illness is treated and has no known cure such as Lupus or Fibromyalgia. We call ourselves spoonies and approximately 25% of chronic pain sufferers eventually lose their jobs as a result of their pain/condition worsening over time. It is somewhat surprising then that before my 10 week pain management programme that I believed I was alone in the world. Suddenly a whole new world of spoonies opened up to me and I am honoured to be a part of this amazing group aiming to help people in Norfolk. I can manage about 1 hour a day focusing on a particular task paced out over about a 3-4 hour period. I could do nothing but that is not in my nature, so a certain number of spoons each day are used to help others. This is not only helping me, but it is an important principle for me and my children. When life throws you lemons crack open the Tequila!

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